SENATE BILL No. 467

 

 

May 5, 2005, Introduced by Senators GEORGE, SWITALSKI, CHERRY, OLSHOVE, JACOBS, HAMMERSTROM, GILBERT, CROPSEY, PATTERSON, PRUSI, BRATER, BARCIA, SCHAUER and STAMAS and referred to the Committee on Health Policy.

 

 

 

 

     A bill to amend 1978 PA 368, entitled

 

"Public health code,"

 

by amending sections 16221, 17020, and 17520 (MCL 333.16221,

 

333.17020, and 333.17520), section 16221 as amended by 2004 PA 214

 

and sections 17020 and 17520 as added by 2000 PA 29, and by adding

 

sections 17020a, 17520a, and 20170a.

 

THE PEOPLE OF THE STATE OF MICHIGAN ENACT:

 

     Sec. 16221. The department may investigate activities related

 

to the practice of a health profession by a licensee, a registrant,

 

or an applicant for licensure or registration. The department may

 

hold hearings, administer oaths, and order relevant testimony to be

 

taken and shall report its findings to the appropriate disciplinary

 

subcommittee. The disciplinary subcommittee shall proceed under

 


section 16226 if it finds that 1 or more of the following grounds

 

exist:

 

     (a) A violation of general duty, consisting of negligence or

 

failure to exercise due care, including negligent delegation to or

 

supervision of employees or other individuals, whether or not

 

injury results, or any conduct, practice, or condition that

 

impairs, or may impair, the ability to safely and skillfully

 

practice the health profession.

 

     (b) Personal disqualifications, consisting of 1 or more of the

 

following:

 

     (i) Incompetence.

 

     (ii) Subject to sections 16165 to 16170a, substance abuse as

 

defined in section 6107.

 

     (iii) Mental or physical inability reasonably related to and

 

adversely affecting the licensee's ability to practice in a safe

 

and competent manner.

 

     (iv) Declaration of mental incompetence by a court of competent

 

jurisdiction.

 

     (v) Conviction of a misdemeanor punishable by imprisonment for

 

a maximum term of 2 years; a misdemeanor involving the illegal

 

delivery, possession, or use of a controlled substance; or a

 

felony. A certified copy of the court record is conclusive evidence

 

of the conviction.

 

     (vi) Lack of good moral character.

 

     (vii) Conviction of a criminal offense under sections 520b to

 

520g of the Michigan penal code, 1931 PA 328, MCL 750.520b to

 

750.520g. A certified copy of the court record is conclusive

 


evidence of the conviction.

 

     (viii) Conviction of a violation of section 492a of the Michigan

 

penal code, 1931 PA 328, MCL 750.492a. A certified copy of the

 

court record is conclusive evidence of the conviction.

 

     (ix) Conviction of a misdemeanor or felony involving fraud in

 

obtaining or attempting to obtain fees related to the practice of a

 

health profession. A certified copy of the court record is

 

conclusive evidence of the conviction.

 

     (x) Final adverse administrative action by a licensure,

 

registration, disciplinary, or certification board involving the

 

holder of, or an applicant for, a license or registration regulated

 

by another state or a territory of the United States, by the United

 

States military, by the federal government, or by another country.

 

A certified copy of the record of the board is conclusive evidence

 

of the final action.

 

     (xi) Conviction of a misdemeanor that is reasonably related to

 

or that adversely affects the licensee's ability to practice in a

 

safe and competent manner. A certified copy of the court record is

 

conclusive evidence of the conviction.

 

     (xii) Conviction of a violation of section 430 of the Michigan

 

penal code, 1931 PA 328, MCL 750.430. A certified copy of the court

 

record is conclusive evidence of the conviction.

 

     (c) Prohibited acts, consisting of 1 or more of the following:

 

     (i) Fraud or deceit in obtaining or renewing a license or

 

registration.

 

     (ii) Permitting the license or registration to be used by an

 

unauthorized person.

 


     (iii) Practice outside the scope of a license.

 

     (iv) Obtaining, possessing, or attempting to obtain or possess

 

a controlled substance as defined in section 7104 or a drug as

 

defined in section 7105 without lawful authority; or selling,

 

prescribing, giving away, or administering drugs for other than

 

lawful diagnostic or therapeutic purposes.

 

     (d) Unethical business practices, consisting of 1 or more of

 

the following:

 

     (i) False or misleading advertising.

 

     (ii) Dividing fees for referral of patients or accepting

 

kickbacks on medical or surgical services, appliances, or

 

medications purchased by or in behalf of patients.

 

     (iii) Fraud or deceit in obtaining or attempting to obtain third

 

party reimbursement.

 

     (e) Unprofessional conduct, consisting of 1 or more of the

 

following:

 

     (i) Misrepresentation to a consumer or patient or in obtaining

 

or attempting to obtain third party reimbursement in the course of

 

professional practice.

 

     (ii) Betrayal of a professional confidence.

 

     (iii) Promotion for personal gain of an unnecessary drug,

 

device, treatment, procedure, or service.

 

     (iv) Either of the following:

 

     (A) A requirement by a licensee other than a physician that an

 

individual purchase or secure a drug, device, treatment, procedure,

 

or service from another person, place, facility, or business in

 

which the licensee has a financial interest.

 


     (B) A referral by a physician for a designated health service

 

that violates section 1877 of part D of title XVIII of the social

 

security act, 42 USC 1395nn, or a regulation promulgated under that

 

section. Section 1877 of part D of title XVIII of the social

 

security act, 42 USC 1395nn, and the regulations promulgated under

 

that section, as they exist on June 3, 2002, are incorporated by

 

reference for purposes of this subparagraph. A disciplinary

 

subcommittee shall apply section 1877 of part D of title XVIII of

 

the social security act, 42 USC 1395nn, and the regulations

 

promulgated under that section regardless of the source of payment

 

for the designated health service referred and rendered. If section

 

1877 of part D of title XVIII of the social security act, 42 USC

 

1395nn, or a regulation promulgated under that section is revised

 

after June 3, 2002, the department shall officially take notice of

 

the revision. Within 30 days after taking notice of the revision,

 

the department shall decide whether or not the revision pertains to

 

referral by physicians for designated health services and continues

 

to protect the public from inappropriate referrals by physicians.

 

If the department decides that the revision does both of those

 

things, the department may promulgate rules to incorporate the

 

revision by reference. If the department does promulgate rules to

 

incorporate the revision by reference, the department shall not

 

make any changes to the revision. As used in this subparagraph,

 

"designated health service" means that term as defined in section

 

1877 of part D of title XVIII of the social security act, 42 USC

 

1395nn, and the regulations promulgated under that section and

 

"physician" means that term as defined in sections 17001 and 17501.

 


     (v) For a physician who makes referrals pursuant to section

 

1877 of part D of title XVIII of the social security act, 42 USC

 

1395nn, or a regulation promulgated under that section, refusing to

 

accept a reasonable proportion of patients eligible for medicaid

 

and refusing to accept payment from medicaid or medicare as payment

 

in full for a treatment, procedure, or service for which the

 

physician refers the individual and in which the physician has a

 

financial interest. A physician who owns all or part of a facility

 

in which he or she provides surgical services is not subject to

 

this subparagraph if a referred surgical procedure he or she

 

performs in the facility is not reimbursed at a minimum of the

 

appropriate medicaid or medicare outpatient fee schedule, including

 

the combined technical and professional components.

 

     (f) Beginning June 3, 2003, the department  of consumer and

 

industry services  shall prepare the first of 3 annual reports on

 

the effect of this amendatory act on access to care for the

 

uninsured and medicaid patients. The department shall report on the

 

number of referrals by licensees of uninsured and medicaid patients

 

to purchase or secure a drug, device, treatment, procedure, or

 

service from another person, place, facility, or business in which

 

the licensee has a financial interest.

 

     (g) Failure to report a change of name or mailing address

 

within 30 days after the change occurs.

 

     (h) A violation, or aiding or abetting in a violation, of this

 

article or of a rule promulgated under this article.

 

     (i) Failure to comply with a subpoena issued pursuant to this

 

part, failure to respond to a complaint issued under this article

 


or article 7, failure to appear at a compliance conference or an

 

administrative hearing, or failure to report under section 16222 or

 

16223.

 

     (j) Failure to pay an installment of an assessment levied

 

pursuant to the insurance code of 1956, 1956 PA 218, MCL 500.100 to

 

500.8302, within 60 days after notice by the appropriate board.

 

     (k) A violation of section 17013 or 17513.

 

     (l) Failure to meet 1 or more of the requirements for licensure

 

or registration under section 16174.

 

     (m) A violation of section 17015 or 17515.

 

     (n) A violation of section 17016 or 17516.

 

     (o) Failure to comply with section 9206(3).

 

     (p) A violation of section 5654 or 5655.

 

     (q) A violation of section 16274.

 

     (r) A violation of section 17020,  or  17020a, 17520, or

 

17520a.

 

     (s) A violation of the medical records access act, 2004 PA 47,

 

MCL 333.26261 to 333.26271.

 

     (t) A violation of section 17764(2).

 

     Sec. 17020. (1) Except as otherwise provided for a test

 

performed under section 5431 and except as otherwise provided by

 

law, beginning  upon the expiration of 6 months after the effective

 

date of the amendatory act that added this section  September 15,

 

2000, a physician or an individual to whom the physician has

 

delegated authority to perform a selected act, task, or function

 

under section 16215 shall not order a presymptomatic or predictive

 

genetic test without first obtaining the written, informed consent

 


of the test subject, pursuant to this section.

 

     (2) For purposes of subsection (1), written, informed consent

 

consists of a signed writing executed by the test subject or the

 

legally authorized representative of the test subject that confirms

 

that the physician or the individual acting under the delegatory

 

authority of the physician has explained, and the test subject or

 

the legally authorized representative of the test subject

 

understands, at a minimum, all of the following:

 

     (a) The nature and purpose of the presymptomatic or predictive

 

genetic test.

 

     (b) The effectiveness and limitations of the presymptomatic or

 

predictive genetic test.

 

     (c) The implications of taking the presymptomatic or

 

predictive genetic test, including, but not limited to, the medical

 

risks and benefits.

 

     (d) The future uses of the sample taken from the test subject

 

in order to conduct the presymptomatic or predictive genetic test

 

and the information obtained from the presymptomatic or predictive

 

genetic test.

 

     (e) The meaning of the presymptomatic or predictive genetic

 

test results and the procedure for providing notice of the results

 

to the test subject.

 

     (f) Who will have access to the sample taken from the test

 

subject in order to conduct the presymptomatic or predictive

 

genetic test and the information obtained from the presymptomatic

 

or predictive genetic test, and the test subject's right to

 

confidential treatment of the sample and the information.

 


     (3)  Within 6 months after the effective date of the

 

amendatory act that added this section  Before September 15, 2000,

 

the department of community health, in consultation with the

 

Michigan board of medicine, the Michigan board of osteopathic

 

medicine and surgery, at least 1 physician who is board certified

 

by the American board of medical genetics, and appropriate

 

professional organizations, shall develop and distribute a model

 

informed consent form for purposes of this section that

 

practitioners may adopt. The department of community health shall

 

include in the model form at least all of the information required

 

under subsection (2). The department of community health shall

 

distribute the model form to physicians and other individuals

 

subject to this section upon request and at no charge. The

 

department of community health shall review the model form at least

 

annually for 5 years after the first model form is distributed, and

 

shall revise the model form if necessary to make the form reflect

 

the latest developments in medical genetics.

 

     (4) The department of community health, in consultation with

 

the entities described in subsection (3), may also develop and

 

distribute a pamphlet that provides further explanation of the

 

information included in the model informed consent form.

 

     (5) If a test subject or his or her legally authorized

 

representative signs a copy of the model informed consent form

 

developed and distributed under subsection (3), the physician or

 

individual acting under the delegatory authority of the physician

 

shall give the test subject a copy of the signed informed consent

 

form and shall include the original signed informed consent form in

 


the test subject's medical record.

 

     (6) If a test subject or his or her legally authorized

 

representative signs a copy of the model informed consent form

 

developed and distributed under subsection (3), the test subject is

 

barred from subsequently bringing a civil action for damages

 

against the physician, or an individual to whom the physician

 

delegated the authority to perform a selected act, task, or

 

function under section 16215, who ordered the presymptomatic or

 

predictive genetic test, based on failure to obtain informed

 

consent for the presymptomatic or predictive genetic test.

 

     (7) A physician's duty to inform a patient under this section

 

does not require disclosure of information beyond what a reasonably

 

well-qualified physician licensed under this article would know.

 

     (8) Except as otherwise provided in subsection (9), as used in

 

this section and section 17020a:

 

     (a) "Genetic information" means information about a gene, gene

 

product, or inherited characteristic which information is derived

 

from a genetic test.

 

     (b) "Genetic test" means the analysis of human DNA, RNA,

 

chromosomes, and those proteins and metabolites used to detect

 

heritable or somatic disease-related genotypes or karyotypes for

 

clinical purposes. A genetic test must be generally accepted in the

 

scientific and medical communities as being specifically

 

determinative for the presence, absence, or mutation of a gene or

 

chromosome in order to qualify under this definition. Genetic test

 

does not include a routine physical examination or a routine

 

analysis, including, but not limited to, a chemical analysis, of

 


body fluids, unless conducted specifically to determine the

 

presence, absence, or mutation of a gene or chromosome.

 

     (c) "Predictive genetic test" means a genetic test performed

 

for the purpose of predicting the future probability that the test

 

subject will develop a genetically related disease or disability.

 

     (d) "Presymptomatic genetic test" means a genetic test

 

performed before the onset of clinical symptoms or indications of

 

disease.

 

     (9) For purposes of subsection (8)(b), the term "genetic test"

 

does not include a procedure performed as a component of biomedical

 

research that is conducted pursuant to federal common rule under 21

 

C.F.R.  CFR parts 50 and 56 and 45  C.F.R.  CFR part 46.

 

     Sec. 17020a. (1) The fact that a presymptomatic or predictive

 

genetic test has been ordered and conducted under section 17020 and

 

the results of that test are privileged and confidential. Except as

 

otherwise provided by law, a person shall not disclose that a test

 

has been ordered or conducted or the results of that test without

 

first obtaining written authorization from the test subject or his

 

or her legally authorized representative as provided under this

 

section.

 

     (2) For purposes of subsection (1), written authorization

 

shall be on a form that is separate from any other written,

 

informed consent form required under section 17020, shall identify

 

to whom the information is to be disclosed, and shall include the

 

following notice:

 

NOTICE OF RIGHTS WITH REGARD TO

 

GENETIC TESTING AND INFORMATION

 

Michigan law restricts requests by h ealth insurers, nonprofit


 

health care corporations, health maintenance organizations, and

 

employers for individuals to submit to genetic testing, to disclose

 

genetic information, or to disclose whether genetic testing has

 

been conducted or the results of that genetic testing. Individuals

 

who have questions about their rights may seek legal advice.

 

     (3) For purposes of subsection (1), a general consent or

 

authorization given for the release of medical records or other

 

information does not constitute written authorization for

 

disclosure under this section.  A separate written authorization

 

shall be obtained for each person to whom the information is to be

 

disclosed. If the test subject or his or her legally authorized

 

representative provides written authorization under this section,

 

the person shall do each of the following:

 

     (a) Provide the test subject with a copy of the signed written

 

authorization.

 

     (b) Maintain the original signed written authorization in the

 

test subject's medical record.

 

     (c) Provide the test subject and the person to whom the

 

information is being disclosed with the following notice:

 

RESTRICTIONS ON FURTHER DISCLOSURE OF

 

GENETIC TESTING AND INFORMATION

 

This information is privileged and confidential.  This information

 

is being provided to you in accordance with Michigan law and shall

 

not be further disclosed without a separate written authorization

 

from the test subject or his or her legally authorized

 

representative.  A general consent or authorization for the release

 


of medical records or other information is not sufficient to

 

authorize the disclosure of genetic testing and information.

 

     (4) If a test subject consents to the performance of a genetic

 

test for the sole purpose of assisting in the recovery or

 

identification of human remains from a disaster or assisting in the

 

identification of living or deceased missing persons by matching

 

forensic DNA profiles in the event of an emergency or disaster,

 

those results as well as the DNA profiles shall only be disclosed

 

and used for those identification purposes, are not public records,

 

are not subject to court subpoena, and are not discoverable in a

 

legal proceeding. Consent provided for testing and DNA profiling

 

under this subsection is not consent for secondary research

 

utilizing those results or DNA profiles or any other use except for

 

the identification of living or deceased missing persons.

 

     Sec. 17520. (1) Except as otherwise provided for a test

 

performed under section 5431 and except as otherwise provided by

 

law, beginning  upon the expiration of 6 months after the effective

 

date of the amendatory act that added this section  September 15,

 

2000, a physician or an individual to whom the physician has

 

delegated authority to perform a selected act, task, or function

 

under section 16215 shall not order a presymptomatic or predictive

 

genetic test without first obtaining the written, informed consent

 

of the test subject, pursuant to this section.

 

     (2) For purposes of subsection (1), written, informed consent

 

consists of a signed writing executed by the test subject or the

 

legally authorized representative of the test subject that confirms

 

that the physician or the individual acting under the delegatory

 


authority of the physician has explained, and the test subject or

 

the legally authorized representative of the test subject

 

understands, at a minimum, all of the following:

 

     (a) The nature and purpose of the presymptomatic or predictive

 

genetic test.

 

     (b) The effectiveness and limitations of the presymptomatic or

 

predictive genetic test.

 

     (c) The implications of taking the presymptomatic or

 

predictive genetic test, including, but not limited to, the medical

 

risks and benefits.

 

     (d) The future uses of the sample taken from the test subject

 

in order to conduct the presymptomatic or predictive genetic test

 

and the information obtained from the presymptomatic or predictive

 

genetic test.

 

     (e) The meaning of the presymptomatic or predictive genetic

 

test results and the procedure for providing notice of the results

 

to the test subject.

 

     (f) Who will have access to the sample taken from the test

 

subject in order to conduct the presymptomatic or predictive

 

genetic test and the information obtained from the presymptomatic

 

or predictive genetic test, and the test subject's right to

 

confidential treatment of the sample and the information.

 

     (3)  Within 6 months after the effective date of the

 

amendatory act that added this section  Before September 15, 2000,

 

the department of community health, in consultation with the

 

Michigan board of medicine, the Michigan board of osteopathic

 

medicine and surgery, at least 1 physician who is board certified

 


by the American board of medical genetics, and appropriate

 

professional organizations, shall develop and distribute a model

 

informed consent form for purposes of this section that

 

practitioners may adopt. The department of community health shall

 

include in the model form at least all of the information required

 

under subsection (2). The department of community health shall

 

distribute the model form to physicians and other individuals

 

subject to this section upon request and at no charge. The

 

department of community health shall review the model form at least

 

annually for 5 years after the first model form is distributed, and

 

shall revise the model form if necessary to make the form reflect

 

the latest developments in medical genetics.

 

     (4) The department of community health, in consultation with

 

the entities described in subsection (3), may also develop and

 

distribute a pamphlet that provides further explanation of the

 

information included in the model informed consent form.

 

     (5) If a test subject or his or her legally authorized

 

representative signs a copy of the model informed consent form

 

developed and distributed under subsection (3), the physician or

 

individual acting under the delegatory authority of the physician

 

shall give the test subject a copy of the signed informed consent

 

form and shall include the original signed informed consent form in

 

the test subject's medical record.

 

     (6) If a test subject or his or her legally authorized

 

representative signs a copy of the model informed consent form

 

developed and distributed under subsection (3), the test subject is

 

barred from subsequently bringing a civil action for damages

 


against the physician, or an individual to whom the physician

 

delegated the authority to perform a selected act, task, or

 

function under section 16215, who ordered the presymptomatic or

 

predictive genetic test, based on failure to obtain informed

 

consent for the presymptomatic or predictive genetic test.

 

     (7) A physician's duty to inform a patient under this section

 

does not require disclosure of information beyond what a reasonably

 

well-qualified physician licensed under this article would know.

 

     (8) Except as otherwise provided in subsection (9), as used in

 

this section and section 17520a:

 

     (a) "Genetic information" means information about a gene, gene

 

product, or inherited characteristic which information is derived

 

from a genetic test.

 

     (b) "Genetic test" means the analysis of human DNA, RNA,

 

chromosomes, and those proteins and metabolites used to detect

 

heritable or somatic disease-related genotypes or karyotypes for

 

clinical purposes. A genetic test must be generally accepted in the

 

scientific and medical communities as being specifically

 

determinative for the presence, absence, or mutation of a gene or

 

chromosome in order to qualify under this definition. Genetic test

 

does not include a routine physical examination or a routine

 

analysis, including, but not limited to, a chemical analysis, of

 

body fluids, unless conducted specifically to determine the

 

presence, absence, or mutation of a gene or chromosome.

 

     (c) "Predictive genetic test" means a genetic test performed

 

for the purpose of predicting the future probability that the test

 

subject will develop a genetically related disease or disability.

 


     (d) "Presymptomatic genetic test" means a genetic test

 

performed before the onset of clinical symptoms or indications of

 

disease.

 

     (9) For purposes of subsection (8)(b), the term "genetic test"

 

does not include a procedure performed as a component of biomedical

 

research that is conducted pursuant to federal common rule under 21

 

C.F.R.  CFR parts 50 and 56 and 45  C.F.R.  CFR part 46.

 

     Sec. 17520a. (1) The fact that a presymptomatic or predictive

 

genetic test has been ordered and conducted under section 17520 and

 

the results of that test are privileged and confidential. Except as

 

otherwise provided by law, a person shall not disclose that a test

 

has been ordered or conducted or the results of that test without

 

first obtaining written authorization from the test subject or his

 

or her legally authorized representative as provided under this

 

section.

 

     (2) For purposes of subsection (1), written authorization

 

shall be on a form that is separate from any other written,

 

informed consent form required under section 17520, shall identify

 

to whom the information is to be disclosed, and shall include the

 

following notice:

 

NOTICE OF RIGHTS WITH REGARD TO

 

GENETIC TESTING AND INFORMATION

 

Michigan law restricts requests by health insurers, nonprofit

 

health care corporations, health maintenance organizations, and

 

employers for individuals to submit to genetic testing, to disclose

 

genetic information, or to disclose whether genetic testing has

 

been conducted or the results of that genetic testing. Individuals

 


who have questions about their rights may seek legal advice.

 

     (3) For purposes of subsection (1), a general consent or

 

authorization given for the release of medical records or other

 

information does not constitute written authorization for

 

disclosure under this section. A separate written authorization

 

shall be obtained for each person to whom the information is to be

 

disclosed.  If the test subject or his or her legally authorized

 

representative provides written authorization under this section,

 

the person shall do each of the following:

 

     (a) Provide the test subject with a copy of the signed written

 

authorization.

 

     (b) Maintain the original signed written authorization in the

 

test subject's medical record.

 

     (c) Provide the test subject and the person to whom the

 

information is being disclosed with the following notice:

 

RESTRICTIONS ON FURTHER DISCLOSURE OF

 

GENETIC TESTING AND INFORMATION

 

This information is privileged and confidential.  This information

 

is being provided to you in accordance with Michigan law and shall

 

not be further disclosed without a separate written authorization

 

from the test subject or his or her legally authorized

 

representative.  A general consent or authorization for the release

 

of medical records or other information is not sufficient to

 

authorize the disclosure of genetic testing and information.

 

     (4) If a test subject consents to the performance of a genetic

 

test for the sole purpose of assisting in the recovery or

 

identification of human remains from a disaster or assisting in the

 


identification of living or deceased missing persons by matching

 

DNA profiles in the event of an emergency or disaster, those

 

results as well as the DNA profiles shall only be disclosed and

 

used for those identification purposes, are not public records, are

 

not subject to court subpoena, and are not discoverable in a legal

 

proceeding. Consent provided for testing and DNA profiling under

 

this subsection is not consent for secondary research utilizing

 

those results or DNA profiles or any other use except for the

 

identification of living or deceased missing persons.

 

     Sec. 20170a. (1) All reports, records, and data pertaining to

 

genetic testing or other genetic information are privileged and

 

confidential. Except as otherwise provided by law, a health

 

facility or agency shall not disclose to anyone, other than the

 

physician or the individual to whom the physician delegated

 

authority under section 16215, the test results of a presymptomatic

 

or predictive genetic test or the fact that such a test was ordered

 

without first obtaining written authorization from the test subject

 

or his or her legally authorized representative as required under

 

section 17020a or 17520a.

 

     (2) If the test subject or the legally authorized

 

representative agrees to the disclosure of information relating to

 

his or her genetics or the presymptomatic or predictive genetic

 

testing, or both, to someone other than the physician or the

 

individual to whom the physician delegated the authority to order

 

such testing, he or she shall provide the health facility or agency

 

with the requisite written authorization.

 

     (3)  If the test subject or his or her legally authorized

 


representative provides written authorization for disclosure under

 

this section, the health facility or agency shall do each of the

 

following:

 

     (a)  Provide the test subject with a copy of the signed

 

written authorization.

 

     (b)  Maintain the original signed written authorization in the

 

test subject's medical record.

 

     (c)  Provide the test subject and the person to whom the

 

information is being disclosed with the following notice:

 

RESTRICTIONS ON FURTHER DISCLOSURE OF

 

GENETIC TESTING AND INFORMATION

 

This information is privileged and confidential.  This information

 

is being provided to you in accordance with Michigan law and shall

 

not be further disclosed without a separate written authorization

 

from the test subject or his or her legally authorized

 

representative.  A general consent or authorization for the release

 

of medical records or other information is not sufficient to

 

authorize the disclosure of genetic testing and information.

 

     (4) If a test subject consents to the performance of a genetic

 

test for the sole purpose of assisting in the recovery or

 

identification of human remains from a disaster or assisting in the

 

identification of living or deceased missing persons by matching

 

DNA profiles in the event of an emergency or disaster, those

 

results as well as the DNA profiles shall only be disclosed and

 

used for those identification purposes, are not public records, are

 

not subject to court subpoena, and are not discoverable in a legal

 

proceeding. Consent provided for testing and DNA profiling under

 


this subsection is not consent for secondary research utilizing

 

those results or DNA profiles or any other use except for the

 

identification of living or deceased missing persons.

 

     (5) Except as otherwise provided in subsection (6), as used in

 

this section:

 

     (a) "Genetic information" means information about a gene, gene

 

product, or inherited characteristic which information is derived

 

from a genetic test.

 

     (b) "Genetic test" means the analysis of human DNA, RNA,

 

chromosomes, and those proteins and metabolites used to detect

 

heritable or somatic disease-related genotypes or karyotypes for

 

clinical purposes. A genetic test must be generally accepted in the

 

scientific and medical communities as being specifically

 

determinative for the presence, absence, or mutation of a gene or

 

chromosome in order to qualify under this definition. Genetic test

 

does not include a routine physical examination or a routine

 

analysis, including, but not limited to, a chemical analysis, of

 

body fluids, unless conducted specifically to determine the

 

presence, absence, or mutation of a gene or chromosome.

 

     (c) "Predictive genetic test" means a genetic test performed

 

for the purpose of predicting the future probability that the test

 

subject will develop a genetically related disease or disability.

 

     (d) "Presymptomatic genetic test" means a genetic test

 

performed before the onset of clinical symptoms or indications of

 

disease.

 

     (6) For purposes of subsection (5)(b), the term "genetic test"

 

does not include a procedure performed as a component of biomedical

 


research that is conducted pursuant to federal common rule under 21

 

CFR parts 50 and 56 and 45 CFR part 46.